TLC :: The Boy Whose Skin Fell Off
I found this difficult to watch, though I deeply wanted to. I know a little girl with EB. I wrote about Katelyn Reithel for the local paper. USA elementary school had a penny drive to raise money for her treatment. She is an easy girl to fall in love with. When I subbed for her class, her classmates told me that I made her a celebrity. When I see her in the classroom or at church and say hi, I feel I know her, there is a special place in my heart for her, a place where prayers never cease and the incense of God's presence is always burning. When I realized that Jonny's story is the same as her's I cried.
